Resources
Educational Videos
Gathering information is one of the most important parts of your journey through Ataxia. Here are just a few videos on the web that we have found helpful.
Genetic Testing
Genetic testing is a very personal decision. It is important to get genetic counseling prior to genetic testing to discuss potential medical, social, and financial impact on your life and your thinking. Here are some resources.
Scientific Research Papers
Settle into an armchair for a deeper dive into scientific literature. Here are links to some online resources about SCA27b, FGF14, related Ataxias, and possible treatments.
Other Resources
Physical & Occupational Therapy
Genealogy
A lot of genealogy research has been compiled on the Darby and Nye families. Stay tuned for online resources to figure out where you fit inside or outside of what we already know. In the end, we are all family!
We have a lot to think about as we move on from initial genetic discovery to new ways to manage and treat SCA27b. We encourage input from our viewers and members for points to ponder and explore. Email us at sca27b@gmail.com
“Knowledge is your power to understand the world in which you and your family live.”
— Paul “Andy” Nye
