Research Studies
Research Studies
As research studies, natural history studies, and clinical trials become available that are specific to SCA27B or include it, they will be posted here. Click the green hyperlinks to get more information about each study.
This is a remote study open to all SCAs - Social network analysis in ataxia patients: exploring correlations with quality of life and functional outcomes
If you are in the U.S. and have genetic confirmation of SCA27B, you may qualify for this MRI study at Johns Hopkins
NAF is coordinating a SCA27B Natural History Study in the US & Canada beginning in 2024. Click here to see if you are eligible. If you are eligible & interested in participating, contact the research coordinator near you. Click here to view a webinar hosted by NAF about what a Natural History Study in ataxia is all about.
NAF hosts a brain donation program. If you live in the U.S. and would like more information about donating your brain (after death :) to ataxia research, click here.