Family Reunion/Research Combo

On June 24, 2023, we hosted a Nye/Darby family reunion infused with blood draws, speech tests, a geneticist, a U Texas graduate researcher, the National Ataxia Foundation CEO & staff, and a film crew from Structure Films. We are working to better define the transmission and progression of ataxia in SCA27b. In collaboration with NAF, Structure Films, and Bill Nye, we are working to produce educational videos to improve public awareness about Ataxia. Video clips of June 24th will be coming soon.